Important dates in the development of the ANCR

  • April 1, 1908 counting the number of cancer patients in Denmark, Danish Cancer Committee
  • May 1, 1908 counting the number of cancer patients in Iceland, Danish Cancer Committee and Chief Medical Officer of Iceland.
  • 1943 foundation of the Danish Cancer Registry - director Dr. Johannes Clemmesen
  • 1952 foundation of the Norwegian and Finnish Cancer Registries
    • director Dr. Einar Pedersen (Norway)
    • director Prof. Erkki Saxén (Finland)
  • Letter, August 14, 1952 from Johannes Clemmesen to Finland (Niilo Voipio, general secretary of the Cancer Society of Finland)
    • It takes time for physicians to get used to cancer registration.
    • At the beginning, also prevalent cases will be reported.
    • Every fifth year not a good idea
    • One-year material not necessarily sufficient
  • January 1, 1954 foundation of the Icelandic Cancer Registry - director Prof. Olafur Bjarnason
  • Letter, May 6, 1954 from Einar Pedersen to Erkki Saxén
    • initiative to compare forms, reports etc.
    • suggestion to more direct contacts
  • Reply, November 16, 1954 from Erkki Saxén to Johannes Clemmesen
    • the idea of an informal joint meeting excellent
    • discussion of different problems in the registration
  • Letter, January 11, 1955 from Johannes Clemmesen to Erkki Saxén
    • Inter-European Symposium in Copenhagen, June 1955
    • 1-2 participants/registry
    • discussion on organization and working methods
    • aim: European cancer registration
    • informal but informative meeting
    • be a "tourist" when booking the hotel!
  • January 1, 1958 foundation of the Swedish Cancer Registry at the National Board of Health - director Prof. Nils Ringertz
  • Letter, June 1, 1961 from Norway (Herman Höst, Landsforeningen mot Kreft)
    • Cancer registry meeting at the Nordic Cancer Union symposium,October 1961
  • Letter, May 29, 1962 from Johannes Clemmesen to Erkki Saxén
    • joint project of "leukaemia distribution in the Scandinavian countries" as planned in 1961 (as the one in progress in Connecticut)
  • September 16-20, 1963: International Symposium on End Results of Cancer Therapy, Sandefjord, Norway
    • participation of the Danish, Finnish and Norwegian Cancer Registries - cf. NCI Monograph No. 15, 1964.
  • Joint initiative by the five Nordic cancer registry directors to the Nordic Cancer Union, October 23, 1965.
    • regular Nordic meetings of cancer registries
    • medical and statistical leaders
    • coordination of activities
    • what is common, what differs
    • life styles, exposures
    • cancer causing factors
    • exclusion of non-causal factors
    • comparisons best done by the institutions that collect the data
    • three-day meetings half-yearly (at the beginning), yearly (later)
  • Letter, May 27, 1966 from Erkki Saxén to Dr. Jörgen Schultz-Larsen, Subeditor of Acta Pathologica et Microbiologica Scandinavica
    • publication of the annual statistics of the Nordic registries (did not happen)
    • difficult to get hold of statistics published in publications by the cancer societies or the nationalboards of health
  • Cancer Incidence in Five Continents. A Technical Report edited by Richard Doll, Peter Payne and John Waterhouse, published by Springer-Verlag for the International Union against Cancer
    • included all the five Nordic countries
  • August 14-15, 1966 the first annual meeting of the Nordic cancer registries, Imatra, Finland
  • Association of the Nordic Cancer Registries founded at the 1984 annual meeting in Uppsala, Sweden
    • statutes
    • tasks
    • board members
    • two/national registry
    • one for regional registries per country
    • one for each special region, e.g. Faroe Islands
  • Examples on scientific joint publications (not a systematic bibliometric analysis)
    • 30 papers based on biobanks
    • more than 10 papers on childhood cancer
    • Synergy based on a joint population of 23 millions and joint scientific and registration forces very good
  • Future challenges
    • different organizational structures
    • cancer society, state
    • accounting for increased knowledge
    • data protection and other laws
    • commercial interest
    • changing society
  • Still a lot to learn from each other